Creating and testing a survey to understand how communication problems affect daily life.
What did the researchers aim to find out?
People who have trouble talking often find it hard to join in everyday activities. Helping them talk better is a big goal of speech therapy. The best way to know how they feel is to ask them directly with a survey. The old survey (CPIB) didn't cover everything and wasn't good for everyone.
We wanted to make a new survey that works for all adults with talking problems and check if it really shows their experiences.
What type of research was done?
Type of Research
1. Reviewing old studies and gathering ideas from people with difficulty talking.
2. Translating questions from the old survey (CPIB).
3. Testing questions with adults who have different talking problems.
4. Asking experts to review the questions.
5. Testing the final questions again with more adults.
Results of the research
We began with 242 questions from talking to a lot of people with talking problems, and research on the old survey. We tested these questions with adults who have different talking problems (like aphasia, speech, language, voice, and hearing issues) to see if they were easy to understand and complete. After making changes, we asked experts to check the new questions and tested them again with more adults. In the end we have 133 questions.
Why was the research done?
The research was done to create a better survey that works for all adults with talking problems and accurately shows their experiences.
What does the research mean for me and others?
This new survey shows your view. It can help speech therapists understand how talking problems affect daily life. It can help set goals for improving communication.
What research methods were used?
Type of Research
1. Reviewing old studies and gathering ideas from people with difficulty talking.
2. Translating questions from the old survey (CPIB).
3. Testing questions with adults who have different talking problems.
4. Asking experts to review the questions.
5. Testing the final questions again with more adults.
How to obtain the treatment detailed in the research?
There was no treatment
Background information on the research topic
People with talking problems often struggle to join in daily activities. Surveys can help understand their experiences and improve speech therapy.
Risks related to the research
No risks
Who was allowed to take part in the research?
Adults with different talking problems (like aphasia, speech, language, voice, and hearing issues) took part in the research.
Information about the people who took part
Adults with different talking problems (like aphasia, speech, language, voice, and hearing issues) took part in the research.
Why was the research done this way?
The research was done this way to make sure the survey was clear, complete, and worked for everyone.
When was the research done?
In 2024
Where was the research done?
The Netherlands
Where did the money came from?
From the HU University of Applied Sciences in the Netherlands
Problems with the research
The research did not mention specific problems.
Is the research trustworthy?
The research was done carefully with input from both adults with talking problems and experts.
Next steps
The next step is to test how well the survey works. This has now (2025) also been done.
Where to find information related to the research?
You can find more information in the International Journal of Language & Communication Disorders.
