Planning the future of aphasia camps in Australia


Summary by: megan.trebilcock The author of this summary states they are an author on the original paper

What did the researchers aim to find out?

To create a plan for the Gold Coast Aphasia Camp to continue.


What type of research was done?

Group work with camp attendees and leaders:

- Sharing ideas 

- Ranking ideas 

- Making plans


Results of the research

1. The group's mission was to create a safe space. Here, people with aphasia and their carers could connect, share, and support each other.

2. Activities to achieve this mission:

- Plan events

- Locate services

- Find funding

3. Plan for the next 12 months:

- Create an aphasia committee

- Advocate for more camps

- Find funding sources

- Work with local services


Why was the research done?

To overcome the risks of:

- Volunteer pressure

- No funding

- Camp not running

The Gold Coast Aphasia Camp is a valued service.


What does the research mean for me and others?

You can help plan and run aphasia camps


What research methods were used?

3 step process:

1. Create a mission

2. Take stock

3. Plan for the future


How to obtain the treatment detailed in the research?

N/A


Background information on the research topic

Aphasia camp help people to:

- Connect with others

- Share stories

- Learn from each other

Aphasia camps are a new service in Australia.

We want to make sure they continue.


Risks related to the research

Some things may be hard to talk about..

 


Who was allowed to take part in the research?

People from the camp who wanted to. 


Information about the people who took part

People from the Gold Coast Aphasia Camp.

- People with aphasia

- Carers

- Student volunteers

- Leaders


Why was the research done this way?

To have input from all people who took part. 


When was the research done?

2024


Where was the research done?

Queensland, Australia 


Where did the money come from?

N/A


Problems with the research

People are from one camp in 2024.


Is the research trustworthy?

People spoke freely.

They were equal.

People with aphasia were helped


Next steps

Check in on group progress.

This will be 12 months after the first meeting. 


Where to find information related to the research?

Contact Megan (megan.trebilcock@sydney.edu.au)




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