Measuring care and outcomes in aphasia treatment after stroke: A study plan

Summary by: sallyz

What did the researchers aim to find out?

This paper describes how the researchers will test a tool kit for measuring outcomes and care for aphasia after stroke in Australian hospitals.

The researchers also plan to find out how much change matters to people with aphasia on key aphasia tests.

What type of research was done?

This study was done at many hospitals. The care and changes to outcomes for people with aphasia was measured over time.

Results of the research

This paper is a study plan. The results will be reported in other papers.

Why was the research done?

People with aphasia after stroke often have poor outcomes compared to people without aphasia.

But there is no one agreed way to measure the quality of aphasia care and the outcomes that people with aphasia experience.

This research aims to test ways of measuring care and outcomes that have been designed together with people with aphasia, family members, clinicians and researchers.

What does the research mean for me and others?

The results from this research aim to:

make it easier to understand the quality of care people with aphasia receive, and where improvements can be made.
measure the outcomes that are most important to people with aphasia.
make it easier to understand when people with aphasia have a meaningful difference as a result of treatments.

What research methods were used?

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How to obtain the treatment detailed in the research?

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Background information on the research topic

To plan personalised and high-quality aphasia treatment, it is important to understand:

the personal information about people with aphasia (their age, gender, etc.)
The type and quality of care they receive
The goals that each person would like to meet.
The outcomes that people achieve after aphasia treatment.

This study aims to give clinicians and researchers a way to measure all of these factors in one toolkit.

Risks related to the research

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Who was allowed to take part in the research?

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Information about the people who took part

The people who will take part in this research are people with aphasia after a stroke in Australian hospitals.

Why was the research done this way?

This study plan shows people what the researchers plan to do before they start the study. This keeps research honest and helps other researchers who want to do similar types of work. It also shares research plans with the people who the research is about.

When was the research done?

The research will be done in 2024 and 2025

Where was the research done?

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Where did the money come from?

A National Health and Medical Research Council Investigator Grant (91175821)
A Medical Research Futures Fund Cardiovascular Health Grant Opportunity (MRF2016134)
Australian Government Research Training Program scholarships